They advised against it thinking that until TSH is low it increases likelyhood of cancer spread as it would increase my metabolism. Post Operative Instruction | Thyroid Surgery Melbourne, VIC Not sure what my TSH read at those doses, but I see my oncologist in a few weeks and am requesting a copy of my medical records should be able to figure out what my levels were with each by comparing them to the dates of prescriptions. The people taking care of you know what they are doing and will make sure that you come out on the other side of the surgery just fine. Once again, have never had that problem nor do I know anyone personally who has any issue whatsoever. I had to cave in and take one of my remaining pain meds. If you are taken care of only half as well as was I, then you will be in excellent hands at the hospital. Answer: Skin laxity after thyroid surgery. I don't know where it is. I've read posts on this board from people who say they've met with doctors who were evasive about answering certain questions. Stay alone in a separate house if you are able for RAI(it really is hard to keep your distance). The first few sips of water are described below, but then the pain quickly got better over the next week. I've read some of the older posts concerning this issue but the posts are discontinued. I also gained 30lbs last summer. They seemed as entertained by me as I was them, since most of the patients are far more groggy. All assured me that I would be in good hands and they would see me in a few hours. That was attributed the nodules and the cancer. But I was informed that they would be delay in visits while I was recovering from radiation treatment. Although there are a limited number of studies showing effects of neck stretching exercises following a thyroidectomy in reducing neck discomfort symptoms, no study has specifically dealt with and examined the effect of neck stretching exercises on neck pain and disability. Parathyroidectomy - Mayo Clinic I have discovered that this is not a good cancer to have and it has not been easy. Since then I have had minor vertigo and a small section of my tongue tastes like metal when eating (supposedly this is do to the taste sensor in the ear?). It took me a bit to realize that it was now 11pm. Within half an hour I was being wheeled to the elevator to head down to the first floor. The day of surgery I was scheduled for 2pm arrival and a 4pm surgery as an outpatient. I'm dizzy like I'm drunk and nauseated. Could be in the supermarket or at KFC, I have no idea. On the 6th I had my hearing test from my 2nd ear surgery, it came back that my left ear is defiantly almost perfectly recovered (to what bone conduction reads) and said I will not have to worry about hearing aids for a few years at least. RAI was determined to be unnecessary, though I see my oncologist every 3 months (had one scare where some of my lymph nodes blew up necessitating a CAT scan last year), my endocrinologist every 6 months, and have my neck ultrasounded every 6 months. Prior to RAI some surgeons recommend T4 and Thyrogen (which is what my surgeon did at our pre-op visit) and some recommend T3 temporarily and going hypo. It just takes the right approach. PDF Thyroidectomy/ Parathyroidectomy Post-Operative Instructions The biopsy of the left thyroid nodule was rated as Bethesda category IV (follicular neoplasm), and the lymph node was consistent with metastatic papillary thyroid cancer. Endocrine Today | A 27-year-old woman with no significant medical history presented to our institution for management of her thyroid cancer. Also I had a follow up with my mental health provider. Injury: Trauma and other injuries can damage muscles, ligaments, disks, vertebral joints and nerve roots in your spinal cord and lead to neck pain. 2. Pain medication doesn't agree with him. Has anyone else had this problem? TeamInspire Cheers. I was diagnosed with a large thyroid mass Dec 2009 Bremerton Naval Hospital in Jan 2010 they determined the mass was follicular cells but could not determine by fine needle aspiration if it was cancerous or not but since it was making it hard to breath they decided to operate to remove my right side thyroid this happened on Feb 22 2010. Facial and Jaw pain. Mentally I feel like I have cleared this massive hurdle. and 6mm papillary carcinoma w/ adjacent 2-3mm papillary carcinoma another section 6mm papillary carcinoma and right parathyroid lymph node with thyroid carcinoma 8mm. My Experience with thyroid cancer - so far: Papillary and follicular thyroid cancer (differentiated), Multiple endocrine neoplasia type 2 (MEN2), Mental challenges of living with thyroid cancer, ThyCa fundraising and thyroid cancer research grants. I had many thyroid nodules but the largest,cancerous one was 3.8 cm. Finally, I told the nurse I was overheating and she suggested taking off the leg squeezing devices. But, I do with exacting detail remember my first sip of water. This is the post I put online two days after surgery https://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/discussion/home-from-tt/ My biggest node was 3.5cm, with a couple other in the 2-3cm range, plus ~30 cancerous lymph nodes. It is estimated that 70% of patients with Horners syndrome after thyroidectomy will have permanent damage or incomplete recovery while the remaining 30% will completely recover between 5 to 15 months after surgery. I was told that I couldn't do radioactive iodine (rai) for six months due to my ct scan (cat scans use iodine for imaging and RAI would not be as effective). July 14th Thursday Bangor Dental appointment with x rays my teeth look healthy just needs some cleanings, they also checked to make sure the radiation therapy I had didnt cause any tooth damage, so far so good. And mostly, please, pass it forward after you have your surgery. Do not scrub the wound or put pressure on it with high pressure water or your fingers. Those are the same medications they give you for a colonoscopy. Korean Society of Laryngology, Phoniatrics and Logopedics Guideline Task Force, et al. She felt my neck and again felt nothing and sent me on my way. By 6:30 or so I was famished. I kind of learned quickly to tilt my chin toward my chest as I swallowed to lessen the pain and actually got the four HIV and a couple of other pills down. Some of it still doesn't make sense to me (in that the sequence of logic fails me), but then again I was on strong pain killers for part of the time and I didn't go to medical school. You can relieve the discomfort using non-steroidal pain medication like ibuprofen. A total thyroidectomy is surgery to remove all of your thyroid gland. I called the office to verify that was correct and was told it was. I know some of my mom's friends who have had it done that were out running a few days later. I really hope you get the feeling that post-op will take good care of you. I also felt extremely nauseous (although I did not vomit). I am still thinking the level of Synthroid is low for me but according to Dr Ch. Ylinen J, Takala EP, Nyknen M, Hkkinen A, Mlki E, Pohjolainen T, Karppi SL, Kautiainen H, Airaksinen O. JAMA. It's been just over two weeks since my thyroidectomy. And yes, I know it could have been worse. So not going to lie, recovery from that absolutely sucked for about 10 days - lots of dizziness, tiredness, general throat and neck pain and uncomfortableness - and I didn't get my drains out for 2 weeks post surgery, which was another great addition to such an extensive surgery. Karen & Dennis. The last 2 days he has been dizzy, lightheaded. Although, I have a lot of support from my family and friends, I am struggling with inexplicable sadness. A full Thyroidectomy was done 6 days ago. 2022 Oct-Dec;18(4):641-642. doi: 10.4103/jmas.jmas_174_21. I was visibly nervous, so my anesthesiologist provided me with some drugs to calm my nerves (they later said it did not calm my heart rate one bit), but as I was wheeled to the OR I felt much calmer. May 5th 2010 was the big day they did a multitude of CT scans (multiple scans over a 3 hour period) followed by a long conversation with the doctors about what they were going to give me. So, here is a more detailed experience of what just the thyroidectomy was like. Total or near-total thyroidectomy: This involves the removal of all or most of the thyroid gland.This surgery is often indicated for large thyroid cancers, large goiters, and Graves' disease. Is RAI 90MCI enough to take out 2 lymphnodes? The pain is in the natural curve of my neck, about 2-3 inches above the incision. Nerve pain or neuropathic pain comes with skin sensitivity, tingling, numbness, and stabbing pain. 2) Got results July 26th and they showed nearly 3cm mass on ultrasound in right lobe of thyroid, all blood work was normal. The visit included an ultra sound and 6 needles biopsy of the mass. . I know its a bit silly but I am kind of nervous of attending the cancer survivor group. I said, it hurt like hell. I have friends that "had a friend that went through this and they are just fine". They have removed most of the mole on my eyebrow and sent it to be checked for cancer. Hi Sweetpea2936! How long it takes to recover will depend on your situation and the type of surgery you had. The type of pain that you will feel greatly depends on the kind of surgery you've had. Tomorrow I have my 1 week post op appointments with both the surgeon and the endocronologist. The quiet house has really helped me get better quickly. Seriously, I'd managed to get half a sip of water down in what was the most painful swallow I'd ever experienced and I now had to take half a dozen HIV antiretroviral and other pills. Neck stretching exercises done immediately after a total thyroidectomy reduce short-term neck pain and disability symptoms. It's a scary place I don't really want to go back to. I think my voice was the last thing to come back, but after 3 weeks that was fine as well. Through the Fall I kept feeling the pain in my neck and again spoke to my primary care doc. I felt bad the first two days but that was it. But, on leaving the hospital I was told to come to the doctor's office in a week for my replacement prescription. It has been beyond informative and makes a huge difference knowing there are people out there that understand. They gave me two pain pills just as I was leaving the hospital and they took about 15 to 20 minutes to kick in. As a complete aside, that bair paws gown they'd put me under was starting to heat up like turkey in a browning bag. 2011 Jan;34(1):62-71. doi: 10.1016/j.jmpt.2010.11.005. Also, for me that was nice because they normally come out on day 2 to 4 after surgery and that would have meant another 100 mile round trip to get the JP drain removed. He also said that the CT scans looks real good and would tell me more in December time frame. I had a softball size tumor and didn't even know it was there, it makes me angry that I didn't, after It was pointed out to me I could actually palm the mass as I swallowed. I was downing water like crazy as well, which helped but also was a double edged sword of making me need to use the restroom quite frequently, which was a chore with all the monitor wires attached. I keep reading about people getting like 8 lymphnodes removed at once and 5 ending up as cancerous. Reinforced what surgeon said, that thyroid replacement should be high after total thyroidectomy. My thyroid was removed due to papillary cancer in April 2008. The middle cervical ganglion and the sympathetic trunk lie posterior to the thyroid gland close to the inferior thyroid artery within the thyroid bed (Figure 2). Epub 2021 Jun 1. Mine is Synthroid and it really is noticeably better. A nurse came in shortly after that and I started an IV with a saline drip. Given that I had what my doctor (the top thyroid surgeon in the region who does hundreds of surgeries a year) said was the biggest surgery he had done all year, my recovery was much worse than what most peoples should be. It's typically worse the day after surgery and quickly begins to get better. Yeah! Most people start to feel recovered in 10 to 14 days. Before Post Operative Expectations | American Thyroid Association He also said he was worried about my balance issue. The patient reported no radiation exposure to head or neck during childhood, but she had a positive family history of thyroid cancer in two paternal cousins, nontoxic multinodular goiter in her father and sister, hypothyroidism in her mother and hyperthyroidism in her maternal grandmother. Vascular dilation on the other side of the face may or may not be present (Figure 1). 9 Mar 2011 1 year from having thyroid removed Second time with the larger dose was a little worse, but nothing terrible. He also set me up with some Blood tests and put in the recommendation for a full Sleep Apnea study in Silverdale. I do remember them asking me a few times if I was in pain and giving me more pain medication. She kind of blew me off although she did do a thyroid TSH test and it was "normal". Before my thyroidectomy I experienced ear pain on and off, where it felt like a sharp, stabbing pain around my left ear. My wife was with me. In the morning they brought me what I asked for for breakfast (Cherios, yogurt, and apple juice). She was treated with 100 mCi of radioiodine-131 and currently has an excellent response to therapy. It will go away. 2019 Dec;98(51):e18309. I slept in this morning until about 8:30 a.m. and am happy to report that I'm feeling a lot like myself. Do they usually do AG and AGant blood work right after TT? Also, at home, you have to empty and measure the JP drains yourself, and when I had them in my abdomen that as difficult. I did not want to be anywhere around my kids or clients. NSAIDs and duloxetine was not effective for these symptoms. So the procedure was to do partial thyroidectomy, and biopsy during surgery, then removed rest if cancerous. I later saw a special on TV (I don't remember if it was Dateline NBC or Front Line PBS) about hospitals getting more aggressive in seeking payments up front. 5 May 2011 1 year out from treatment (for radiation) The diet is annoying, but even with being ridiculously strict (pretty much only ate fruits, veggies and egg whites), its only for a short time and at least is a good diet. Which is what I had expected because that is what I was told. They said they caught it early though and think they were both stage one cancers. Furlan AD, Yazdi F, Tsertsvadze A, Gross A, Van Tulder M, Santaguida L, Cherkin D, Gagnier J, Ammendolia C, Ansari MT, Ostermann T, Dryden T, Doucette S, Skidmore B, Daniel R, Tsouros S, Weeks L, Galipeau J. Evid Rep Technol Assess (Full Rep). What to Expect After Thyroidectomy: 5 Things You Should Know 2 Sep end of my convalescence leave, and back to work. In late November I realized I was getting mild depression and my workouts were getting harder to do and basically was running out of energy.
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